2014年4月15日 星期二

給書玄

書玄是我在八卦版認識的第一個也是唯一在八卦版認識的朋友,                       
我跟他會認識是因為他分享關於血癌的文章,                                       
那時候看到覺得這人意志力好堅強簡直就是打不死的蟑螂,                           
聊着我生命中另一位血癌朋友的故事                                               
http://metawilo.blogspot.tw/2013_02_01_archive.html                            
                                                                               
                                                                               
                                                                               
前陣子我才因為自己的狀況不太好,                                               
跟書玄丟了水球,有點小抱怨自己低迷的心境,                                     
因為我自己是罕見疾病雷伯氏遺傳性視神經萎縮症的患者,                           
回診的時候少看了一行視力檢查表,等於我戴上眼鏡只有0.3,                        
本來開開心心地回診,想說應該不需要再做什麼檢查,維持現狀就是進步了,           
沒想到一檢查出退步的結果,醫生就很緊張,陸續幫我安排了很多檢查。

書玄建議我找時間多練習白手杖,至少在自己有準備的狀況下去適應會比較快,         
畢竟還沒有癱瘓,不管怎麼樣總可以學著自己獨立生活個幾天,                       
不管怎樣還是要工作,還是要照顧自己,要學著自立自強,                           
真的不行就打119,那陣子我時常發高燒。                                          
                                                                               
                                                                               
                                                                               
雖然我們沒有見過面,但是我們總在臉書上、ptt、ptt2上互相關心著,                
真正的痛苦是只有自己能夠承受,誰也幫不了你。                                   
                                                                               
                                                                               
但是書玄上我最敬佩的地方是他痛苦著,卻又在痛苦之餘快樂地幫助他人,             
就算他的狀況再糟糕,他總是相信自己可以撐得過來,我們也都這麼的相信著!         
                                                                               
                                                                               
                                                                               
Bro!!你要撐住,這麼多難關,這麼多這麼痛苦的時光都挺過去了,                  
這次這關也給我挺過去,未來也都一直給我們挺過去!                               
                                                                               
                                                                               
你有你的北鼻在照顧你,也有我們祝福著你,關關難過關關過!                       
                                                                               
                                                                               
活著!我還要等著跟你一起嘴賤阿!                                               
                                                                               
                                                                               
                                                                               
最後送你 食指 的 相信未來這首詩,                                              
請大家幫我推個:書玄,我們都相信你撐得過去,撐住!                             
                                                                               
                                                                               
  當蜘蛛網無情地查封了我的爐台,                                             
  當灰燼的餘煙嘆息著貧困的悲哀,                                             
  我依然固執地鋪平失望的灰燼,                                               
  用美麗的雪花寫下:相信未來。                                               
                                                                               
                                                                               
  當我的紫葡萄化為深秋的霧水,                                               
  當我的鮮花依偎在別人的情懷,                                               
  我依然固執地用凝露的枯籐,                                                 
  在淒涼的大地上寫下:相信未來。                                             
                                                                               
  我要用手指那湧向天邊的排浪,                                               
  我要用手掌那托住太陽的大海,                                               
  搖曳著曙光那支溫暖漂亮的筆桿,                                             
  用孩子的筆體寫下:相信未來。                                               
                                                                               
                                                                             
  我之所以堅定地相信未來,                                                   
  是我相信未來人們的眼睛--                                                 
  她有撥開歷史風塵的睫毛,                                                   
  她有看透歲月篇章的瞳孔。                                                   
                                                                               
                                                                             
  不管人們對於我們腐爛的皮肉,                                               
  那些迷途的惆悵;失敗的苦痛,                                               
  是寄予感動的熱淚,深切的同情,                                             
  還是給以輕蔑的微笑,辛辣的嘲諷。                                           
                                                                               
                                                                               
  我堅信人們對於我們的脊骨,                                                 
  那無數次的探索、迷途、失敗和成功,                                         
  一定會給予熱情客觀、公正的評定,                                           
  是的,我焦急地等待著他們的評定。                                           
                                                                               
  朋友,堅定地相信未來吧,      
  相信不屈不撓的努力,                                                       
  相信戰勝死亡的年輕,                                                       
  相信未來,熱愛生命。                                                       
                                                                               
                                                                               
                                                                               
                                         1968年   

2 則留言:

  1. 書玄,我們都相信你撐得過去,撐住!

    回覆刪除
  2. 書玄,我們都相信你撐得過去,撐住!

    回覆刪除